Hiển thị các bài đăng có nhãn disorder. Hiển thị tất cả bài đăng
Hiển thị các bài đăng có nhãn disorder. Hiển thị tất cả bài đăng

Thứ Ba, 5 tháng 3, 2013

Parents of Violent Mental Disorder Patients Share Their Stories to Lawmakers

The father of a young man whose battle with mental illness ended in suicide told a bipartisan group of Congress members today about the sometimes nightmarish struggles he faced trying to help his son.

"I can't tell you the horror it is to have a child, behind you, going down an interstate highway, trying to get him to the place to save him and he tells you, 'If you stop the car, I'll jump out and kill myself with these trucks behind us,'" Pat Milam said, recounting the trauma of care for his young adult son, who had swallowed a bottle of pills in one of several attempts to commit suicide.

That attempt was ultimately unsuccessful. But at the age of 24, Matthew Milam would take his own life, a mere eight days after being discharged from a psychiatric ward where he was treated for bipolar disorder and paranoid schizophrenia.

He used a makeshift explosive device on that final attempt. Police had previously told his father they could not charge Matthew with a crime after he had alerted them to finding materials to construct pipe bombs in his room at home.

Milam was one of three parents who appeared at a mental health and violence forum discussion today on Capitol Hill that was hosted by the oversight subcommittee of the House Energy and Commerce Committee. The body called the meeting due to its bearing over the private health industry.

The event today is latest such panel to be formed as the nation calls for investigations into the causes of a series of mass shootings in recent years.

RELATED: Newtown Shooter Adam Lanza had Sensory Processing Disorder

The guests blamed what they perceived as a failed American mental health system for their family's ordeals, and in the case of Milam, death.

Pete Earley, whose own adult son had been successfully treated for illness, said vigorous and constant outpatient service was required.

"We need to change the commitment process," he said. "But we can't just change that if you don't back it up with services. Because there's no place to go."

According to the Child Mind Institute, 15 million Americans under the age of 24 suffer from a mental disability, but there are only approximately 7,500 certified child psychiatrists.

A national stigma surrounding mental illness, combined with costs, weak health insurance coverage, and a bureaucratic maze of state and local guidelines have resulted in the average patient requiring two years to be identified and seek treatment according to the institute.

RELATED: Medical Bills Bankrupt Families of Mentally Ill Children

Earley, a former Washington Post reporter, documented his son's case in his book, "Crazy." He told the panel a turning point came when the family found a dedicated case worker, who helped the young man adjust into independent living with two roommates also undergoing treatment.

"That took a tremendous job off of me," Earley said. "I could be the parent."

Earley's son is now employed in the state of Virginia as a "peer-to-peer" support specialist, helping incarcerated individuals with mental illness overcome their disability.

"Most people with mental illnesses can get better. You got to give them hope. You've got to give them the tools to do it," he said.

The panel was also joined by Liza Long, whose blog about her own trials with a violently mentally ill 13-year-old went viral after the December shooting deaths of 20 Connecticut first graders and six adults. was named for the gunman.

Long, who said her son is currently taking a "cornucopia of drugs" to control his rage, says sometimes parents' only safe option is to have their children charged with a crime.

"We live in fear of the future," she said. "What will happen when my son turns 18? Will my son harm himself or others? How will I pay for all the services I need to keep my child functioning?"

The mother asked for increased funding for the school counselors, research, and consistent community resources. In addition she asked the lawmakers to consider an expanded budget for the Individuals with Disabilities Education Act.

Representative Timothy Murphy, D-Pa., led the forum. In his closing remarks he told the assembled experts and lawmakers that while the discussion helped members "understand the fears, the worries, the love, the frustration," of the issue at hand, the general welfare of the country demanded a thoughtful and deliberate way forward.

"I want to make sure we don't do some knee-jerk reactions and think because we did something, we did the right thing," he said. "The worst thing we can do is lull ourselves into some state of sleep, and say 'Well, we took care of mental illness so we're done for the next decade.'"

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Thứ Ba, 26 tháng 2, 2013

UK study confirms GSK flu shot link to rare sleep disorder

LONDON (Reuters) - GlaxoSmithKline's Pandemrix swine flu vaccine has been linked to cases of the rare sleep disorder narcolepsy in children in a scientific study in England that confirms similar findings elsewhere in Europe.

The vaccine, more than 30 million doses of which were given during the H1N1 flu pandemic in 2009-2010, contains a booster, or adjuvant, and may have triggered an adverse immune reaction in some children at higher genetic risk of narcolepsy, scientists said in new research published on Wednesday.

Researchers at Health Protection Agency (HPA) who published the study in the British Medical Journal said the at least 14-fold increased risk they found had "implications for the future licensing and use of adjuvanted pandemic vaccines".

Narcolepsy is a life-long disorder and thought to be an autoimmune disease in which patient's immune system attacks the body's own cells. Its symptoms include frequent bouts of daytime sleepiness and in its severe forms it also causes night terrors, hallucinations and cataplexies - when strong emotions trigger a sudden loss of muscle strength.

Studies in Finland, Sweden and Ireland have also found a Pandemrix link to narcolepsy, and GSK says more than 800 cases linked to the shot have been reported in Europe.

A spokesman for the British drug maker told Reuters on Wednesday: "We really want to get to the bottom of this and understand more about the potential role of Pandemrix in the development of narcolepsy."

He added, however, that GSK believes "the available data are insufficient to assess the likelihood of a causal association between Pandemrix and narcolepsy."

As Reuters reported earlier this month, scientists investigating the link further are homing in on the vaccine's adjuvant, a booster called AS03, and analysing whether its super-charging effect may have played a role.

According to the UK results, vaccination with Pandemrix at any time was associated with a 14-fold increased risk of narcolepsy, whereas vaccination within six months before onset of the disease was associated with a 16-fold increased risk.

"The increased risk of narcolepsy indicates a causal association," said the research team led by Liz Miller, a consultant epidemiologist with the HPA. They added, however, that because of variable delay in diagnosis, the risk may be overestimated because vaccinated children may have been referred to specialist sleep clinics more rapidly.

Scientists said the risk translated into around one in 50,000, lower than studies have found in other countries such as Finland and Sweden where Pandemrix was used more widely and the risk was around one in 16,000 to 17,000 children vaccinated.

In total, more than 30 million doses of the GSK shot were given in 47 mainly European countries during the H1N1 flu pandemic. It was not used in the United States.

The UK study looked at 75 children aged between four and 18 who were diagnosed with narcolepsy from January 2008 and who attended sleep centres across England. Eleven of the children had been vaccinated with Pandemrix before their symptoms began.

Finn stressed that Pandemrix is the only vaccine linked to this problem: "There is nothing to suggest that it occurs after other flu vaccines or vaccines against other diseases."

Narcolepsy is thought to be due to loss of function in cells called hypocretin cells in one of the brain's sleep centres.

John Shneerson, a consultant physician from the Respiratory Support and Sleep Centre at Papworth Hospital in Cambridge who co-led the UK study, said Pandemrix may have triggered an immune reaction against those cells, causing narcolepsy in some children who were genetically vulnerable.

Experts say around 25 percent of Europeans have a genetic profile making them more susceptible. Narcolepsy has no known cure, but specialist doctors say symptoms can be treated with drug combinations aimed at re-regulating the sleep-wake cycle.

(Reporting by Kate Kelland; Editing by Will Waterman)


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